Disability is the condition of being disadvantaged as a result of
a physical or mental impairment that precludes a normal completion
relatively to a particular (physic, psychic or sensorial) area. It
follows a disadvantage that make difficult the normal daily life
and the acquisition of a social role inside the belonging
community.
When we consider the various relational and social implications
related to the disability, we have firstly keep in our mind that
if it is true that the disabled children, because of their
impairment, have notable difficulties to develop some harmonious
and integrated relationships with other people, it is true that
also many people have remarkable difficulties to establish some
harmonious and adequate relationships with the disabled
individuals. This last is certainly a factor increasing the
children’s psychic and interpersonal troubles.
We have to consider that, also in absence of any physical
illnesses, some environmental and cultural influences can,
sometimes, provoke alterations of the physical growth and the
psychic development. About this, it is enough to mention the
Hospitalism Syndrome, described in 1945 by Renč Spitz, concerning
infants, for long time hospitalised or institutionalised, who,
despite well-nursed by high-specialised personal, are suffering
from early deprivation by reason of a prolonged separation from
their mother. They, at times, showed a serious arrest of their
growth and development, besides a high susceptibility to the
infectious illnesses and consequently sometimes a high mortality.
Following these researches, today finally in the paediatric
departments the mother is allowed to remain with her child during
the whole hospitalisation.
Going back to the problems of interaction between a disabled
individual and his entourage (we means above all his parents,
educators and coetaneous, including brothers and sisters) we have
to mention some dynamics well explained by recent research on the
human communication, which can be synthetically summarized in
these following formulations:
a) every behaviour is a communication provoking an answer that in
turn is another behaviour-communication (action and retroaction);
b) the behaviour of a member, inside a family (or of a small
group), influences inevitably the behaviours of all the other
members with the result that the family (or group) ecosystem
becomes stable through models of interrelation/communication that
at last put everyone in role hardly changeable. All, for instance,
know the figure of the scapegoat.
A child's birth, namely the entry of a new member into a family
group, is an event loaded with many meanings, expectations and, at
times, vicissitudes. Naturally the problems rise and intensify
when the new member is a child who will have some disability.
In the past, before the development of the health services, the
assistance net and the socio-cultural support for the disabled
persons, one had frequently occasion to see wrong behaviours
towards the these children. The reactions floated between the two
extreme of the (more or less unconscious) rejection and the
hyper-protection. When the prevailing feelings often was a mixture
of anger, resentment and guilt in the parents, they seemed
incapable to contain a more or less hidden refusal towards their
child, he grew up sensing the dark feeling not to fully be desired
and beloved. Contrarily it often happened, as it happens still
today, that the parents succeeded to face their negative feelings
replacing them with excessive worries and hyper-protection. In
other words, many suffocating attentions took the place of the
usual maternal cares as principal way to hold feelings of guilt.
The sense of guilt can be denied only at the price of an incessant
vigilance, but like this, a child can never develop his most
possible autonomy.
Evidently, various subtle dynamics strongly impinge on the
fortunes of the family group which has to devote itself to a
disabled child. For instance, it is important the role the other
children and the attitude that their parents pour onto them. At
times, a strong mutual resentment arises between husband and wife.
At times, various social worries can also influence the family and
sometimes possible social prejudices; in these cases they don't
are missing the love and the availability towards the disabled son
but the surrounding environment doesn’t help the family to
accept the disadvantageous condition of their child.
First objective to reach is to inform the parents about the
objective reality about their child, the specificities of his
disability and the features of his personality. It is necessary
help them to find a correct equilibrium between the subjective
reality (the parental feelings) and the objective reality (the
true conditions of their child), which generally appear notably
discrepant.
Often the principal obstacle to the realistic acceptance of their
child’s disadvantage is the conviction by the parents that they
have given life to something imperfect with consequent feeling of
failure. This experience is certainly hard to bear and the parents
try to overcome it acting various defence and compensation
mechanisms. Sometimes the "guilt" for the child
disability is projected on some external reality, other times the
same disability is somehow denied. The support furnished by
experienced family-relationship counsellors can generally favour
in the parents of the disabled child the awareness of their
defence and compensation mechanisms and all can be fundamental for
a greater acceptance of their child’s impairment.
What is necessary to underline is that in every case, already
before being and functioning as a person (baby person in evolution)
and, therefore, (in relational terms) before communicating,
behaving and acting, a child, from the moment he begins to
manifest his disability, can undergo to various (both conscious
and unconscious) messages, communications, behaviours and actions,
by the encircling people, that are psychologically certainly
itself troubling because full of inappropriate attitudes, such
that they, rarely, except for parents psychically disturbed or
particular conditions of life, are suffered by normal children.
The consequences of this first moulding concerning the disabled
child, in addition to the difficulties regarding the development
and maturation, are the arising of ways of answer and subsequently
of interaction which are perfectly complementary or symmetrical to
the received negative stimuli. That is the disabled child will
have always the tendency to develop relationships and expect
other’s attitudes analogous to those experienced in the earlier
years of life.
Until now we have examined some among the principal external or
psycho-social causes interfering on the disabled child’s
potential development. Now it is necessary to examine another
aspect that is related to the intra-psychic repercussions of the
disability, both from neuro-psychological and psychic point of
view. In relation to the first point it needs to consider that the
development of the various neuro-psychological functions is
interdependent; therefore, in relationship to the disability,
hardly ever we will see simply a mental backwardness or a
development-block partially regarding one or more functions and/or
ability to performance, on the contrary a global maturative
pathology including the various functions typical of a certain age
(praxis-gnosis functions, motility, bodily scheme, language,
affectivity, character, intelligence).
From the psychic point of view - considering that the subjective
experience of the personal trouble, a certain uneasiness to
compare himself with the normal peer group and some interpersonal
failures constitute a chronic psychic traumatism which exalts in a
closed circuit the adaptation – one will have to operate so that
to prevent elevated states of insecurity and anxiety and
consequent depressive episodes, states of aggressiveness, blocks
inhibitors or negativism or real psychotic autism.
Speaking of psychotic autism we have to underline that, for the
different implications both from the evolutionary and the
therapeutic point of view, it needs to make a distinction between
the organic psychic disabled children and functional psychic
disabled children, the latter are better definable as psychotic
children (also specifying that in the babyhood never the
psychiatric alterations are separated by organic injuries).
Generally, the organic psychic disabled children, namely the
carriers of primitive encephalic organic injures, manifest almost
always a marked tendency to practice theirs, even if limited,
potential of ability and besides they display notable efforts of
adaptation to the environmental requirements. Contrarily, the
psychotic children, who have exclusively disorders of the mental
operative functions in absentia of organic alterations, manifest
almost a refusal to use their, at times notable, potential
abilities also maintaining a possibility of remarkable recovery as
result of careful and technically correct cares. Besides, it needs
to keep in mind, that, in the evolutionary age relatively to the
functional (not- deriving from a brain organic alteration)
troubles, the following rule is true: the troubles are imitative,
provoked or reactive and they disappear when the causes end. Now
we can better understand, from the therapeutic point of view, as
the treatments are different according to the nature of the
alterations: predominantly rehabilitative with possible
psychotherapeutic supports when the pathology is organic; mainly
psychotherapeutic and eventually joined to rehabilitative supports
when the psychic pathology is only functional.
Going again to the relational and social aspects, there is to
consider that to the disabled child (and to the people surrounding
him) the growing up costs several problems in relation to the
achievement of the possible personal autonomy, the physical
independence and psychological emancipation. Often the parents
assume some wrong educational attitudes because they sometimes
pose to the child too insufficient stimuli, other times some
excessive solicitations. Often one makes confusion between the
child’s “not to want” and his “not to be able”. In
reality, it would be better thing to safeguard the child from
excessive pressures finalized to get some performances that could
be superior to his possibilities; they can subsequently be too
frustrating and not only to provoke irritability and
aggressiveness but also feelings of discouragement and failure.
The opposite attitude, the hyper-protective, therefore too scarce
requirements and solicitations, in comparison with how much the
child could do, are equally frustrating and negative because this
attitude deprives him of whatever should help him to seek and to
acquire ability and compensatory gratifications relatively to
fields in which the disability doesn't inflict. For instance, the
physically disabled child can be helped to find realization in
intellectual field, just as the intellectually insufficient child
can be able to reach some results in the field of the physical
activities [see “Psycho-pedagogic activities for disadvantaged
school children”; in www.psicologia-dinamica.it , home pg., link:
thematic area]. Besides, really the quantity and the quality of
contact with the environment generally determine the rhythm of
individual development; how much lesser are such opportunities, so
much more serious it will be the disadvantage. Scarce (or centred
on the dependence) social relationship deprive the children of the
fundamental intellectual and social stimuli that only the contact
with other people can assure. Similarly it is necessary that the
minor can avail of people that continually organize and renew
appropriate stimuli to develop his cognitive functions and the
abilities to mental performance. Likewise, the development of
adequate schemes of emotional behaviour needs the repeated
experience of social events and situations as the interest, the
praise, the approval and the affective reward in relation to
desirable forms of behaviour; besides, the social support ahead of
the adversities, and, finally, aftercares but so as they don't
produce new problems in the emotive sphere. What matters is that
the development of the disabled child is allowed to progress at
the maximum of his personal possibilities.
A child, as long as he attends the maternal school, spends his
time in a protective and playful atmosphere; but as soon as he
attends the elementary school, experiences a radical change since
the new context means objective evaluation, judgment on the
abilities, demand of performance, comparison and rivalry with the
classmates; but above all he now have to do an unusual effort of
adaptation and to be able to socialize: that is to be together
with the other schoolfellows, sat and applied, practically in a
work-position totally analogous to that many adults, doing a
sedentary work, have to assume. Evidently, this system doesn't
favour the disabled child’s scholastic adaptation, and all makes
more difficult the schoolmates’ and, above all, teacher’s
assignment to help him to be better school integrated; such
difficulties are partly whetted by the most greater or lesser
awareness that the child has of his own diversity. At times,
because of all that, the disabled person manifests his own
uneasiness by means of psycho-emotional blocks, restlessness or
aggressive behaviours, above all when he is invaded from the
anguish or from the fear.
Rarely, in comparison with the past, today there are difficulties
to find classmates available towards the disabled child, similarly
less frequently they are the complaints from parents of the other
pupils for the fear that the school-insertion of the disabled
child can somehow to slow the progress of the entire class.
It is often the lack of suitable institutional structures and not
a teacher’s inappropriate preparation that negatively influences
the disabled child’s process of socialization and scholastic
integration. These problems can be overcame by teachers who know
what way of gratification and disapproval can facilitate or
inhibit the process of learning; they, besides, haven’t not to
pretend that is the student to adapt himself to the programs and
the mentality of the teaching staff but on the contrary; at last,
they have to be able to manage an individualized teaching through
the planning of precise objectives to reach and to periodically
verify. Just for this it is necessary to avoid hasty placements
and the lacking in a preliminary accurate neuro-psychological
investigation finalised to verify the individual basic
potentialities. Besides, it is necessary to develop an accurate
preparatory work, so that the teachers have appropriate operative
methods without everything ends simply with a generic humanitarian
acceptance.
The multidisciplinary childish neuropsychiatry service has the
assignment of supporting and counselling the educators. The
multidisciplinary équipe has to deepen in analytical way (functional
diagnosis) the psycho-physic development at that moment reached by
the disabled child in the various areas (cognitive,
affective-relational, expressive-linguistics, sensorial,
praxis-motor and neuro-psychological [memory, attention,
space-time orientation, etc.] and to verify the level of his
reached autonomy. The childish neuropsychiatry service, as per the
emerging potentialities and the possibilities of rehabilitation,
traces - together with the teaching staff and the specialized
auxiliary teachers, and with the collaboration of the child’s
family - after a first period of school-inclusion, the short and
medium term attainable child’s level of development (functional
dynamic profile), planning an individualized program (educational
individualized program) and a variety of interconnected (scholastic
and extra-scholastic) didactic-educational and rehabilitative
enabling the disabled child to reach as the best possible level of
education, instruction and integration into society.
The teacher’s psychological formation is fundamental to avoid
that they can be frustrated by the discrepancy between the anyway
hoped results and those practically gotten. It is in the moment in
which the attended results don't correspond to the dedication and
to the employed efforts, that, just in the moment of the
disappointment, can begin the wish of “releasing”, which could
be interpreted also as "confused perplexity" to
underline that the teacher or the social operator can, at the end,
lose the way for continuing to manage a difficult situation
because it is characterized by repeated failures. The solution is
partly technique and partly formative.
For technical solution we don't intend now refer to the
traditional devolution to the “psy” operators, but on the
contrary we make reference to the acquisition by the educator of
competences that allows him the strengthening of the ability to
take on himself the disadvantaged pupil, however to the light of
one “constructive reason”, in the sense also of construction
of relationship with the pupil, as a relationship that can develop
on the way of a “situation structured through a structured
approach", what only the school can probably offer in a
natural ambience, that is to say not in laboratory, or rather
where the laboratory can become natural environment allowing
not-marginalizing grouping. On the other hand, it also needs to
consider that every human being, therefore every child, apart from
some individual constants, interacts in different way according to
the person he has a relationship. Insofar, we will see him as
docile and compliant with one, instead as restless and rebellious
with another person. This depends a lot on the attitude of whom
one has in front and on the context in which the meeting becomes.
Naturally this is true also for the disabled child. It is not
presumable that a child, who receives ambiguous messages and feels
embarrassment by the facing person, for instance the teacher,
doesn't have any consequent emotional and behavioural reaction,
even if he is a child treated with psychotherapy or rehabilitation.
On the other hand the rehabilitation therapist or childish
psychotherapist cannot never replace the teacher in his specific
assignments. That is to say only the teacher can carry on that
part of the work that is the really his own!
In the cases of disabled children, alongside the systematic
institution of many extra-educational moments, the construction of
a technically correct relationship has to respect the following
fundamental rule: considering that the child has some specific
sectorial deficits which somehow delay his global maturation, the
care and the applications attitudes have to respect the state of
his reached maturation. So for example by a 8 year-old child, who
however has a stadium of neuro-psychological maturation comparable
to that of a 5 year-old child, we cannot expect performances,
behaviours and attitudes different from those common to a 5
year-old child; what mattes is not to deprive him of suitable
stimuli to the development. So, another example, it would be an
error to require to a child, whose cognitive development is still
in full phase pre-operational (see Jean Piaget), some
psycho-intellective performances that can complete only a child
who has already reached the stadium of the concrete-operations.
Only after he will have been helped to consolidate all the
abilities which are peculiar to a determined stadium of the
psycho-cognitive development, the child can try, without excessive
frustrations, some activities which are connected to the following
phase. All the children need experiences appropriate to their
level and rhythm of development and the disabled child doesn't
make any exception; he goes through the same phases of development
like the other children but his evolutionary rhythm it is
different.
Before concluding, another aspect, connected to the teacher’s
psychological formation, must be underlined. In general, we can
sustain that the teacher is an operator technically equipped
relatively to the specific assignment that he has to face.
Naturally it is necessary that the technical preparation is
accompanied by human dowries or, if one prefers, by specific
sensibilities. We want to avoid, here, to face some matters as
those tied up to the professional ethic which in most cases could
compensate, when they are lacking, the human dowries or the
sensibilities, while we think necessary to set the accent on the
fact that, if the qualification or technical preparation it is
easily obtainable by the teacher through the specific university
instruction, instead none university course can teach the
sensibility. In truth, there are methods like the psychoanalysis (finalized
to restructure the personality) which allow a development of
sensibility or human quality, but, they undoubtedly are expensive
methods by the emotional, time and economic point of view;
therefore only few people can grasp them. There are some
possibilities of psychological formation that, also not offering a
real restructuring of the personality, they allow a partial
modification of the personality above all in relation to the
aptitude to establish suitable professional relationships. It
would undoubtedly be necessary that all the social operators were
psychologically formed to the relationship to the professional
relationship, but the same formation is insufficient if the social
operator is lacking in goodwill. An operator very often feels the
need to endow himself with a psychologically formation really
because he has taken conscience of the deep psycho-emotive
implications connected to the relationship with the user;
therefore, we can affirm that the formation is fruit of a wish to
acquire formative experiences. In the most serious cases the
operator cannot be defined properly endowed because he is lacking
in qualification, formation and sensibility. In that cases, in
conclusion, a part of the teacher’s Self and a part of the
child’s Self will end with being forced to live their meeting as
something of absurdity and of incomprehensible, like a bad dream
which will force them to find out of their relationship some more
gratifying reality. In every institution also the “group mind”,
namely the operative staff as an indistinguishable whole, can
influence the entire context in a negative way. Sometimes some
recurrent group dynamics end with overhanging the individual
resources, the creativeness, the cooperation. So a few educators,
the class-teachers, could be trapped in a sort of group mind that
negatively influences the operative models and practices; but it
is clear that the group mind, even if not consciously shared by
the single one, anyway represents the result of the anonymous
contribution of every one.
It needs reflect on all these things when one works with disabled
children.